Save Lives! Defeat Hereditary Hemochromatosis

by Stephen Cobb on July 5, 2010

Fight Celtic CurseHereditary hemochromatosis, it’s what killed Hemingway! Hemochromatosis is the most common genetic killer in America, particularly prevalent in people of Celtic origin, but you don’t have to be Irish to be a victim of this widely under-diagnosed condition which causes crippling disabilities such as: …continued…

Menopause + Hemochromatosis = Hemopause (and women of a certain age are at risk)

September 29, 2014

For women entering menopause, hereditary hemochromatosis can be damaging and even deadly. We call it hemopause. Let’s raise awareness of both menopause and hemochromatosis, because the latter is making the former a matter of life and death for too many women.

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Hacking hemochromatosis: how to get your HFE gene status via 23andMe (C282Y, H63D, and S65C)

September 21, 2014
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For people concerned about hereditary hemochromatosis we have put together instructions on using 23andMe to determine your HFE gene status from raw DNA data that the $99 genetic testing service provides to new and existing customers.

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Introducing Hemo-Doc-Stars: doctors who ‘get’ hemochromatosis

July 26, 2014
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To mark Hemochromatosis Awareness Month this July, 2014, we asked visitors to the Fighting Hemochromatosis page on Facebook to let us know if they had encountered a GOOD hemochromatosis doctor. Why? Doctors who ‘get’ hemochromatosis are hard to find, even though hereditary hemochromatosis is the most common genetic killer in America today. We were pleasantly surprised […]

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Death by Ignorance: Millions of Americans at risk from hemochromatosis, but few doctors know much about it

June 28, 2014
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Ignorance of hemochromatosis kills countless thousands of Americans every year. Some 13 million are at risk, yet most have never heard of it. Untreated hemochromatosis can cause toxic levels of iron in your body and lead to liver cancer, cardiomyopathy, and diabetes, to name but a few of the deadly complications of this easily-treated inherited condition.

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New St Patrick’s Day Tradition: Ferritin Checks Save Lives!

March 16, 2014

Here is a modest proposal to save lives on St. Patrick’s Day: Get your ferritin checked! This is a simple blood test to let you know how your body is handling iron. If your ferritin is “high” then your body may be loading iron, which can cause serious damage to joints, liver, heart, brain, and […]

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10 things to know about ports, the ones for blood not ships

February 10, 2014

10 points about “ports” that are installed in patients who need to endure a lot of blood drawing due to excess iron from hereditary hemochromatosis or HH. Frequent therapeutic phlebotomy can be hell on your veins and a port might be the way to go.

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Hemochromatosis tall tales and the HFE gene

September 3, 2013
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The effect of HFE hemochromatosis on human height is considered in a recent study, and it adds to other selection factors that could have led to the spread of this mutation over thousands of years.

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Hemochromatosis and cinical trials

August 29, 2013
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If you or a loved one suffers from hereditary hemochromatosis (HH), you may have experienced the widespread frustration that comes with this condition, frustration that you can’t get answers, or treatment, or relief from the damage done by iron overload. One non-conventional medical strategy you might consider is clinical trials. Before you look at how […]

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Could Randy Travis be suffering from hereditary hemochromatosis?

July 28, 2013
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The widely reported health problems of singer and actor Randy Travis may serve to draw attention to the connection between iron overload cardiomyopathy (IOC) and hereditary hemochromatosis (HH). PLEASE NOTE: This article does not say Randy Travis has hemochromatosis.

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Haemochromatosis testing questions: serum iron, ferritin, genes, scales and other basic info

July 7, 2013
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Basic questions about testing for haemochromatosis (hemochromatosis) answered, plus suggestions those worried they may have the genetic form of the condition, as well as healthy individuals who want to be proactive.

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We’re back from the hack: We appreciate your patience

April 20, 2013
cyber crime hurts everyone

Celtic Curse is back after some thoughtless cyber criminals attacked the server on which this website is stored and used it for their own purposes. We have taken measures to prevent a recurrence and will try to keep the helpful information coming.

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Featured Hemochromatosis Resource: MedlinePlus from NIH

March 20, 2013
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From time to time here on Celtic Curse we will be highlighting hemochromatosis sources that we think are particularly helpful. The first of these is from MedlinePlus, which is aservice of the U.S. National Library of Medicine at the National Institutes of Health.

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