News
Keeping track of news and developments in the world of hemochromatosis.
Hemingway's Death and Hemochromatosis Awareness
Ernest Hemingway died from hereditary hemochromatosis on July 2, 1961, exactly 50 years ago today. You might have read that Hemingway died of a self-inflicted gunshot wound, but hereditary hemochromatosis–also known as HHC, iron overload, bronze diabetes and Celtic Curse–was undoubtedly the underlying cause of his death. Quite by coincidence, July is Hemochromatosis Awareness Month in America, time to raise awareness of the most common genetic killer in America.
Welcome to Ireland President Obama: How's your hemochromatosis?
President Obama arrived in Ireland today and although the main focus of his visit is diplomacy, he is also set to connect with his Irish roots. He will visit the village of Moneygall in County Offaly, home to just under 300 people, some of whom are distant relatives of the President (as reported by Christian [...]
Protect Genetic Testing: Petition the FDA
A simple genetic test is all it takes to know if hereditary hemochromatosis, the most common genetic killer in America, is in your genes. Your doctor can order this test or you can order the test yourself, direct from a reputable testing service. But that may change. The Food and Drug Administration is seriously considering [...]
Comments to the FDA Meeting on Consumer Access to Genetic Tests
The following comments were submitted to the Food and Drug Administration by Stephen Cobb, in preparation for the planned meeting of the Molecular and Clinical Genetics Panel of the Medical Devices Advisory Committee, said meeting to be held March 8-9, 2011, to discuss issues surrounding direct-to-consumer access to genetic testing. FDA Comment Tracking Number: 80bfb28b [...]
July is Hemochromatosis Awareness Month
“Did you know that July is National Hemochromatosis Awareness Month?” That simple sentence is all you need to start a conversation about the Celtic Curse. Some people may respond with “Hemo-what-osis?” and that’s when you hook them with “You know, Celtic Curse?” We’ve struck up conversations like that with lots of different people and so [...]
A Call for Widespread Hemochromatosis Screening in Scotland: Study could prove value of screening
As you may have figured by now, here at CelticCurse.org we are big believers in more widespread hemochromatosis screening. The cost of catching hemochromatosis early is way less than caring for someone suffering the effects of untreated hemochromatosis. So we were interested to read this article in The Scotsman, an excellent Scottish newspaper (note the [...]
