News

Keeping track of news and developments in the world of hemochromatosis.

HR 1313: life-threatening law targets Americans with genetic defects

[Updated on May 6, 2017: in the interests of objectivity and avoiding allegations of peddling fake news I am providing this link to the Snopes article on HR1313 that points out the bill does not technically require employees to share their family’s genetic data with their employer. However, as I wrote to Snopes: HR1313 could […]

Hemingway's Death and Hemochromatosis Awareness

Ernest Hemingway died from hereditary hemochromatosis on July 2, 1961, exactly 50 years ago today. You might have read that Hemingway died of a self-inflicted gunshot wound, but hereditary hemochromatosis–also known as HHC, iron overload, bronze diabetes and Celtic Curse–was undoubtedly the underlying cause of his death. Quite by coincidence, July is Hemochromatosis Awareness Month in America, time to raise awareness of the most common genetic killer in America.

Blood Variance and Hemochromatosis: Iron News from the Iron Disorders Institute

This is just a quick post to remind folks that the Iron Disorders Institute (IDI) has a ton of information about hereditary hemochromatosis. You will find a lot of useful documents in the library on the IDI website. You can also get their monthly newsletter via email. Here’s a link to the latest issue in […]

HFE testing: an open letter to the American College of Medical Genetics and Genomics

Dear American College of Medical Genetics and Genomics: According to a recent article on GenomeWeb your organization, the ACMG has declared that: “HFE testing shouldn’t be ordered for patients who don’t have iron overload or a family history of HFE-related hereditary hemochromatosis.” Frankly, this is some of the worst medical advice I’ve ever seen published, it […]

Hemochromatosis tall tales and the HFE gene

The effect of HFE hemochromatosis on human height is considered in a recent study, and it adds to other selection factors that could have led to the spread of this mutation over thousands of years.

Could Randy Travis be suffering from hereditary hemochromatosis?

The widely reported health problems of singer and actor Randy Travis may serve to draw attention to the connection between iron overload cardiomyopathy (IOC) and hereditary hemochromatosis (HH). PLEASE NOTE: This article does not say Randy Travis has hemochromatosis.

National Menopause Awareness Month + Hemochromatosis = $50 off 23andMe gene test

September is National Menopause Awareness Month and what better way to mark the occasion than getting your genes checked for hereditary hemochromatosis. Why? Because menopause ends the monthly blood loss that can mask the most common deadly genetic condition in America: hereditary hemochromatosis (also called iron overload, Celtic Curse, bronze diabetes, or HH and HHC […]

Thank You ABC: For highlighting hemochromatosis (Celtic Curse) on St. Patrick's Day

This is great! A news organization making the connection between Celtic curse, St. Patrick’s Day and hemochromatosis. Please share this story with friends (a more complete blog post on this is in the works). The more people know about this condition the better. Celtic Curse is a leading cause of diabetes, liver cancer, joint pain, […]

Welcome to Ireland President Obama: How's your hemochromatosis?

President Obama arrived in Ireland today and although the main focus of his visit is diplomacy, he is also set to connect with his Irish roots. He will visit the village of Moneygall in County Offaly, home to just under 300 people, some of whom are distant relatives of the President (as reported by Christian […]

Protect Genetic Testing: Petition the FDA

A simple genetic test is all it takes to know if hereditary hemochromatosis, the most common genetic killer in America, is in your genes. Your doctor can order this test or you can order the test yourself, direct from a reputable testing service. But that may change. The Food and Drug Administration is seriously considering […]

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