Thank You ABC: For highlighting hemochromatosis (Celtic Curse) on St. Patrick’s Day

March 17, 2012
Thumbnail image for Thank You ABC: For highlighting hemochromatosis (Celtic Curse) on St. Patrick’s Day

This is great! A news organization making the connection between Celtic curse, St. Patrick’s Day and hemochromatosis. Please share this story with friends (a more complete blog post on this is in the works). The more people know about this condition the better. Celtic Curse is a leading cause of diabetes, liver cancer, joint pain, […]

Read the full article →

Hemochromatosis Blood: An untapped national resource?

July 23, 2011
Thumbnail image for Hemochromatosis Blood: An untapped national resource?

So here’s your chance to help expand our nation’s blood supply. Just hand your doctor or nurse or blood clinic staff this professional, medically reviewed information about hemochromatosis, a condition that comes with one amazing benefit: Treatment involves giving blood! That’s healthy, bankable blood for the country’s blood supply.

Read the full article →

Deadly Ignorance: 13 million Americans have hemochromatosis, but most have never heard of it

July 13, 2011
Thumbnail image for Deadly Ignorance: 13 million Americans have hemochromatosis, but most have never heard of it

Ignorance of hemochromatosis kills countless thousands of Americans every year. Some 13 million Americans are at risk, yet most have never heard of it. Tragically, if you do not treat hemochromatosis it can cause toxic levels of iron to build up in your body and lead to liver cancer, cardiomyopathy, and diabetes, to name but a few of the potentially life-ending complications of this inherited condition.

Read the full article →

Cirrhosis, Alcohol, Ignorance and Prejudice: Welcome to the dark world of hereditary hemochromatosis

June 17, 2011
Thumbnail image for Cirrhosis, Alcohol, Ignorance and Prejudice: Welcome to the dark world of hereditary hemochromatosis

Imagine the shock of getting a call from the intensive care unit of your local hospital telling you that your brother has been admitted. The doctor says your brother is delirious and combative and “in the throes of advanced alcoholism.” Furthermore, he has cirrhosis of the liver, internal bleeding, and ketoacidosis—a medical emergency in which […]

Read the full article →

Welcome to Ireland President Obama: How’s your hemochromatosis?

May 23, 2011

President Obama arrived in Ireland today and although the main focus of his visit is diplomacy, he is also set to connect with his Irish roots. He will visit the village of Moneygall in County Offaly, home to just under 300 people, some of whom are distant relatives of the President (as reported by Christian […]

Read the full article →

New Hemochromatosis Links, Blogs, Interviews, Discussions

May 1, 2011

This post is a quick update to let you know we’re still here and still working on raising awareness of hemochromatosis, even though the twin demands of the “day job” and coping with HH have been taking up most of our time (that’s why there’s no fancy image to go with this post). Fortunately, we […]

Read the full article →

Protect Genetic Testing: Petition the FDA

March 16, 2011
Thumbnail image for Protect Genetic Testing: Petition the FDA

A simple genetic test is all it takes to know if hereditary hemochromatosis, the most common genetic killer in America, is in your genes. Your doctor can order this test or you can order the test yourself, direct from a reputable testing service. But that may change. The Food and Drug Administration is seriously considering […]

Read the full article →

Comments to the FDA Meeting on Consumer Access to Genetic Tests

March 1, 2011
Thumbnail image for Comments to the FDA Meeting on Consumer Access to Genetic Tests

The following comments were submitted to the Food and Drug Administration by Stephen Cobb, in preparation for the planned meeting of the Molecular and Clinical Genetics Panel of the Medical Devices Advisory Committee, said meeting to be held March 8-9, 2011, to discuss issues surrounding direct-to-consumer access to genetic testing. FDA Comment Tracking Number: 80bfb28b […]

Read the full article →

Let’s Defeat Hemochromatosis in 2011

February 22, 2011
Thumbnail image for Let’s Defeat Hemochromatosis in 2011

Defeating hemochromatosis begins with awareness. Stephen Cobb encourages everyone to tell ten people about hemochromatosis this year, and if everyone of them tells ten people, then 2011 could turn the tide against this deadly genetic condition.

Read the full article →

Coffee, Tea, Fe? The truth about meal-time iron absorption

December 30, 2010

Does drinking coffee or tea with a meal reduce the amount of iron your body absorbs from the meal? That question is the subject of this post and a matter of concern for two groups of people: those with too much iron, like hemochromatosis sufferers, and those with not enough iron, like people with anemia. […]

Read the full article →

The Iron Conference Report and Some Celtic Curse Support Notes

November 5, 2010

This is the first version of a post that will become longer when I get a chance to write more. As some readers will have noted from my tweets ( follow @CelticCurse on Twitter) the second weekend of October put me in Charlotte, North Carolina, for the Iron Conference, an event put together by the Iron […]

Read the full article →

Dealing with The Damage Done: A recurring theme in hemochromatosis victims

October 5, 2010

I want to talk about an aspect of hemochromatosis that I refer to as “The Damage Done.” When I read the comments on this blog and on the Hemochromatosis page on Facebook, they bring home to me the fact that there is a whole other side to hemochromatosis awareness. You might even call it the […]

Read the full article →