Cirrhosis, Alcohol, Ignorance and Prejudice: Welcome to the dark world of hereditary hemochromatosis

June 17, 2011
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Imagine the shock of getting a call from the intensive care unit of your local hospital telling you that your brother has been admitted. The doctor says your brother is delirious and combative and “in the throes of advanced alcoholism.” Furthermore, he has cirrhosis of the liver, internal bleeding, and ketoacidosis—a medical emergency in which […]

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Welcome to Ireland President Obama: How’s your hemochromatosis?

May 23, 2011

President Obama arrived in Ireland today and although the main focus of his visit is diplomacy, he is also set to connect with his Irish roots. He will visit the village of Moneygall in County Offaly, home to just under 300 people, some of whom are distant relatives of the President (as reported by Christian […]

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New Hemochromatosis Links, Blogs, Interviews, Discussions

May 1, 2011

This post is a quick update to let you know we’re still here and still working on raising awareness of hemochromatosis, even though the twin demands of the “day job” and coping with HH have been taking up most of our time (that’s why there’s no fancy image to go with this post). Fortunately, we […]

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Protect Genetic Testing: Petition the FDA

March 16, 2011
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A simple genetic test is all it takes to know if hereditary hemochromatosis, the most common genetic killer in America, is in your genes. Your doctor can order this test or you can order the test yourself, direct from a reputable testing service. But that may change. The Food and Drug Administration is seriously considering […]

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Comments to the FDA Meeting on Consumer Access to Genetic Tests

March 1, 2011
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The following comments were submitted to the Food and Drug Administration by Stephen Cobb, in preparation for the planned meeting of the Molecular and Clinical Genetics Panel of the Medical Devices Advisory Committee, said meeting to be held March 8-9, 2011, to discuss issues surrounding direct-to-consumer access to genetic testing. FDA Comment Tracking Number: 80bfb28b […]

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Let’s Defeat Hemochromatosis in 2011

February 22, 2011
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Defeating hemochromatosis begins with awareness. Stephen Cobb encourages everyone to tell ten people about hemochromatosis this year, and if everyone of them tells ten people, then 2011 could turn the tide against this deadly genetic condition.

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Coffee, Tea, Fe? The truth about meal-time iron absorption

December 30, 2010

Does drinking coffee or tea with a meal reduce the amount of iron your body absorbs from the meal? That question is the subject of this post and a matter of concern for two groups of people: those with too much iron, like hemochromatosis sufferers, and those with not enough iron, like people with anemia. […]

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The Iron Conference Report and Some Celtic Curse Support Notes

November 5, 2010

This is the first version of a post that will become longer when I get a chance to write more. As some readers will have noted from my tweets ( follow @CelticCurse on Twitter) the second weekend of October put me in Charlotte, North Carolina, for the Iron Conference, an event put together by the Iron […]

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Dealing with The Damage Done: A recurring theme in hemochromatosis victims

October 5, 2010

I want to talk about an aspect of hemochromatosis that I refer to as “The Damage Done.” When I read the comments on this blog and on the Hemochromatosis page on Facebook, they bring home to me the fact that there is a whole other side to hemochromatosis awareness. You might even call it the […]

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Menopause or Hemo-pause? What women of a certain age need to know about HHC

September 5, 2010
Menopause Awareness Month

September is Menopause Awareness Month. Regular readers of will know that July was Hemochromatosis awareness month. So why is this website–devoted to raising awareness of Celtic Curse or hereditary hemochromatosis (HHC)–talking about menopause? The answer is: hemo-pause. What is hemo-pause? It’s a term we coined for a syndrome which afflicts women entering menopause with […]

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Celtic or Viking, a Curse is a Curse: Hereditary hemochromatosis, firewalls, and genetic killers

August 15, 2010

In my opinion, one of the main reasons that treatment and diagnosis of hereditary hemochromatosis (HHC) is inadequate in some countries is a general failure to grasp just how widespread the condition is.

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Hemochromatosis Symptoms: What NOT to expect

July 25, 2010

Describing the symptoms of hemochromatosis can be tricky. As we have noted elsewhere:  “Early signs and symptoms of hereditary hemochromatosis mimic those of many other common conditions, making it difficult to diagnose.” (Mayo Clinic) Adding to the challenge is the fact that not everyone who has HHC exhibits every symptom of HHC. For example, the bronze […]

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